Beyond the Rare： The Future of Surgery and Science in Pheochromocytoma-Paraganglioma Management

Описание

Special thanks to the AAES Patient Advocacy Committee for joining us and putting together this panel for the Pheo Para Alliance's 6th Annual Awareness Week!

Topics include:
*Lessons from Patients: Recognizing the Misunderstood: Discussion of non-specific and unrecognized symptoms, future directions for awareness and education
*Perioperative Standards and Controversies: Traditional approaches to preoperative preparation (alpha-blockade, blood pressure control), postoperative management and follow up (inpatient vs. outpatient; ICU; lessons from expert centers); discussion of research on avoiding preoperative blockade
*Imaging Innovations and What’s on the Horizon: Established modalities (MIBG, CT, MRI) and their limitations; Cutting-edge nuclear medicine and functional imaging
*Emerging Treatments and Surgical Advances: Minimally invasive and robotic approaches (cortical-sparing); role of surgery in metastatic disease; novel systemic therapies
*The Future of Genetic Testing in Pheo Para: Current recommendations and precision medicine (tailoring care to molecular profiles)
*“Where Do We Go From Here?”: The role of patient partnerships and advocacy; Audience Q&A

Moderators:
Dr. Iuliana Bobanga, Patient Advocacy Committee
Dr. Joana Ochoa, Patient Advocacy Committee
Panelists:
Dr. Electron Kebebew, Stanford University School of Medicine
Dr. Cortney Lee, University of Kentucky School of Medicine
Dr. Marybeth Hughes, Eastern Virginia Medical School of Old Dominion University